Our Programs

Our Mission, Vision and Purpose

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Resource Centre

Education & Awareness

Who Are We

At Hydrocephalus Canada, we are more than an organization—we are a community. A community built on hope, strength, and unwavering support for those impacted with hydrocephalus and spina bifida across Canada.

Inspired by voices like Shauna Beaudoin, our Director, Programs & Information—an advocate living with spina bifida—we work to break down barriers, challenge misconceptions, and create opportunities for those living with these spina bifida and hydrocephalus/ From coast to coast, we stand beside individuals, families, caregivers, and healthcare professionals, offering resources, advocacy, and a voice for those who need it most.

Our mission is to empower, educate, and inspire, ensuring that no one takes this journey alone. Through support groups, awareness initiatives, and research advancements, we are committed to creating a future where every person living with hydrocephalus and spina bifida can live their fullest life.

Together, we push for progress. Together, we break barriers. Together, we are Hydrocephalus Canada.

You are not alone. We are here for you.

At Hydrocephalus Canada, we are grounded by 3 guiding statements:

Our Mission

Connecting the spina bifida and hydrocephalus communities across Canada through services, support, education, awareness and research.

Our Vision

A future without spina bifida and hydrocephalus.

Purpose

Hydrocephalus Canada (HC) is the trusted source for compassionate, progressive and innovative solutions that drive efforts to:

Develop a Canadian strategy; to increase awareness about hydrocephalus and spina bifida
Create solutions that support prevention, early and accurate diagnosis and access to appropriate treatment, advancement of new treatments and optimal outcomes
Develop, establish, enhance and maintain education and awareness resources and encourage inclusive supportive hydrocephalus and spina bifida communities
Fund Impactful Research
Hydrocephalus Canada has a devoted staff and a strong, diverse and innovative Board of Directors with legal, financial, scientific, media and not for profit experience. It is counselled by a Medical Advisory Board (MAB) comprised of experts who specialize in hydrocephalus and spina bifida, and who are known and respected internationally. As the authoritative voice of Canadians living with hydrocephalus and/or spina bifida, we help those impacted by conditions to not only survive but thrive.

Equity, Diversity, Inclusion and Accessibility Statement:

At Hydrocephalus Canada, it is our mission to assist our unique population of all ages and walks of life to reach their greatest potential. We accomplish this by working in collaboration with our Board of Directors, volunteers and community partners to play our part in fostering an inclusive, diverse, accessible and equitable world, starting with our own organization.

For over 50 years, our core values have continually been based on building an inclusive, caring, respectful and responsible barrier-free Canada for all, with a strong commitment to those impacted by the complex life-long neurological conditions of hydrocephalus and/or spina bifida. We actively work to end discrimination daily and to provide an inclusive working environment where everyone feels respected, heard, valued and supported.